Yes, you read that right. I flipped the coined phrase, “work smarter not harder.” As a special needs Mom, the above phrase has been a mantra that I have applied to life many times over. If I worked smarter, it would make life so much easier. I search for clothes that would make diaper changing …
November 2020
The Everyday.
Much of life consists of every day ordinary things. Work and school, Hiles family Friday fun night, church on Sundays rinse and repeat. Our family is probably not too different from yours other than the fact we have a special needs child. Having Addie has altered our life in many ways beginning with meal times …
Keep Running
Today is Aicardi Awareness Day. Aicardi Syndrome is the disorder that affects every aspect of Addie’s life. Instead of focusing on all of Addie’s disabilities today, we thought we’d highlight one of her amazing ones. Never let a label define you. Don’t quit….Keep running!
Visiting the Grief but Living in the Blessing
Liz and Jason talk about grief and blessing with having a special needs child.
Where do I find help?
I read a study the other day that stated 18% of US children have special healthcare needs. That’s 13 million children! The resources to help these children with medications, therapies, and additional supports vary by state and each state has their own guidelines for eligibility based on severity of diagnosis and family income. It can …